Today there is no cure for Hunter Syndrome. However, there are hospitals actively researching a cure. With your support we can fund clinical trials and help beat this disease. Together we are fighting to keep our children alive.
Hunter Syndrome is the worst disease you never heard of. As a rare, fatal genetic disorder, Hunter Syndrome doesn't have the worlds attention. With your help we can change that. By placing much needed attention on finding a cure you can save our children.
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Hunter syndrome is a rare genetic disorder that occurs when an enzyme your body needs is either missing or doesn’t work properly.
Because the body doesn’t have enough of the enzyme to break down certain complex molecules, the molecules build up in harmful amounts in certain cells and tissues. The buildup that occurs in Hunter syndrome eventually causes permanent, progressive damage affecting appearance, mental development, organ function and physical abilities.
Hunter syndrome appears in children as young as 18 months. It nearly always occurs in males.
There’s no cure for Hunter syndrome. Treatment of Hunter syndrome involves management of symptoms and complications.
Sock-it 2 Hunter Syndrome is a foundation dedicated to fundraising for research and development towards finding a cure for MPSII. To that end, we encourage the general public to take action through social media, by sharing our story, participating in events and directly making donations.
Our board of directors is a combination of loving and caring individuals with a passion for preserving the integrity of our message: Our aim is to not only find a cure for Hunter Syndrome, but to fund research for improved treatment options.
Sock-it 2 Hunter Syndrome is an IRS approved non-profit organization (EIN 81-4264057) . All contributions are tax deductible and used to directly fund research and development designed to find a cure for Hunter Syndrome.
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